We are dedicated to providing the highest possible level of support for people living with rare diseases. Our commitment to supporting our community includes providing resources that may help manage the daily complexities along the diagnostic and treatment odyssey. If you would like to learn more about how we can help, please contact us at firstname.lastname@example.org.
COMMITTED TO PATIENTS AND FAMILIES
Sara Cole, MPH
Head, Commercial Operations and Patient Services
Sara Cole has spent much of her nearly 2-decade long career working with patients suffering from rare diseases; however, nothing prepared her for caring for her own son who was diagnosed with DiGeorge Syndrome while in the NICU at Massachusetts General Hospital in Boston, MA. Though her son appears to have overcome the worst of his medical issues, he still faces the unknown journey of where having DiGeorge Syndrome may take him. As her son writes his own story, Sara wants to use both her professional and personal experiences to support and guide patients and their families through their own journeys. Sara Cole is the Head of Commercial Operations and Patient Services at Enzyvant.
Michele Rhee, MBA, MPH
Head, Patient Affairs
Michele Rhee was diagnosed with thyroid cancer at 20 while a junior in college, which serendipitously led to a life-threatening rare disease diagnosis the next year. Unlike many others diagnosed with cancer or a life-threatening rare disease, Michele was lucky enough to have effective, life-saving treatments. At the time, she had never heard of patient advocacy but knew that she wanted to use her unbelievable luck to help patients who had nothing, no hope. Today, she has the luxury of health, and she works as a patient advocate as her day job. Michele is Head of Patient Affairs at Enzyvant, a founding Board member of Costs of Care, and a Sambassador for the Samfund.