We are dedicated to providing the highest possible level of support for people living with rare diseases. Our commitment to supporting our community includes providing resources that may help manage the daily complexities along the diagnostic and treatment odyssey.

Michele Rhee, MBA, MPH

Head, Patient Affairs

Michele Rhee was diagnosed with thyroid cancer at 20 while a junior in college, which serendipitously led to a life-threatening rare disease diagnosis the next year. Unlike many others diagnosed with cancer or a life-threatening rare disease, Michele was lucky enough to have effective, life-saving treatments. At the time, she had never heard of patient advocacy but knew that she wanted to use her unbelievable luck to help patients who had nothing, no hope. Today, she has the luxury of health, and she works as a patient advocate as her day job. Michele is Head of Patient Affairs at Enzyvant, a founding Board member of Costs of Care, and a Sambassador for the Samfund.